Presently, What information/ support is out there?
Specifically in Sri Lanka/ Asia as there are many reported motor cycle accidents that occur on a daily basis.
17 years living with this injury I’ve ever only known of 2 other support groups. One in the UK (http://www.tbpi-group.org/) and one in the US (Mostly for patients when the injury occurs at birth) (http://www.ubpn.org/).
In my own experience in 2003 (3 years after my accident when I moved to England), only then I got the opportunity to learn more of my injury as when I was living in Sri Lanka there was very limited information and no support groups available at the time.
I was first in touch with UBPN.org forum, however at the time they provided mostly support to patients/ families that when this injury occurs during birth.
I was however referred to TBPI-UK (around 2005/6) by someone who commented on a post of my story and I was involved in that group until I left England in 2010. I still am in occasional contact in the group forums.
In terms of Sri Lanka, as of now there is no such awareness/ support group for people suffering with this injury & for families/ loved ones of the affected patients.
How does this injury occur?
(Courtesy of tbpi-group.org)
In adults the commonest cause of injury is traction (stretching) of the brachial plexus, usually sustained during a road traffic accident (RTA), mainly in motorcyclists. Occasionally damage occurs to the major blood vessels that carry blood to and from the arm (subclavian artery and vein).
Currently, it is unknown how many cases of Brachial Plexus Injury occur every year in Sri Lanka. Majority of people affected are a large proportion is adults. One of the largest single groups of adults affected by this injury are motorcyclists, so much so that the condition is often referred in some countries as ‘Biker’s Palsy’.
Another cause of this injury can also be caused to infants during the birthing process and these injuries are referred to as ‘Obstetrical Brachial Plexus Injuries’. There is an active support group for families affected by OBPI which has done great work in raising awareness of the birth related injury. www.erbspalsygroup.co.uk
We hope, through this web site, to provide a similarly successful resource for adults with a Brachial Plexus Injury.